Technorati href="http://www.technorProfile Thinking Nurse: Healthcare Discrimination and People With Learning Disabilities

Thinking Nurse

This blog will reflect my interests in learning disabilities, nursing, nursing theory, philosophy and politics and my general interests in the arts and literature. (Nursing is an art as well as a science!) Philosophy and nursing have been intrinsically linked since the days of Socrates, his mother was a midwife, and taught him everything he knew!

Monday, February 28, 2005

Healthcare Discrimination and People With Learning Disabilities

Discrimination in healthcare against people with Learning Disabilities

I have posted before about some of the shocking ways in which people with learning disabilities or mental health problems suffer serious discrimination from health services – discrimination that actually shortens life expectancy and reduces quality of life: http://thinkingnurse.blogspot.com/2004/12/disability-rights-commission-expose.html

There can be little doubt that if a racial or religious minority suffered this kind of discrimination, it would be a national political scandal, but because it is people with disabilities who are suffering, their voices are hardly heard at all.

A document produced by MENCAP ‘Treat Me Right!’ (Available from www.mencap.org.uk/treatmeright ) is full of frightening examples of discrimination, going on in the UK today, and it’s painful and deadly consequences for people with learning disabilities.

True stories from this document include the tale of ‘Max, who broke his hip at 30, suffered immense pain, having fits, moaning and punching himself in the face. It was too late when doctors finally realised he had blood poisoning because of kidney problems. Max died.

Other people, like ‘Sarah’, found that regular, generic services were unwilling to treat her, instead referring her back to the learning disability team.

‘Ibrahim’ found that GPs never spent the necessary time to let him explain what was wrong with him, or to explain the treatment so that Ibrahim could understand it.

‘Cathy’, a girl with Down’s syndrome had her ear damaged by a doctor who did not know that people with Down’s syndrome have smaller ear canals, he pushed an instrument to deeply into her ear, and irreparably damaged her hearing.

‘Anthony’s’ parents had to stay with him 12 hours a day, during his stay in hospital, because otherwise nobody bothered to feed him.

One mother heard a doctor remark about her daughter “That’s not coming in my room, it will destroy the equipment’.

People who work in learning disability services can furnish many stories of health professionals who have acted in a discriminatory way – operations that have been refused using the learning disability as a reason, post mortems that have cited ‘learning disability’ as a cause of death, doctors who have remarked ‘I need to have the skills of a vet with this person’. Mental Health services that flatly refuse to accept referrals of people with learning disabilities who also have mental health problems.

Opening up health services to people with learning disabilities so that they get the same quality of healthcare as everyone else is not necessarily that difficult – it simply requires a little thought and effort, a readiness to be flexible, to listen to the person and their carers, and to respect their expertise on the individual. Parents and carers who have worked with a person for years, are the best people, for example, to recognise when a person who cannot talk is in pain, far more than a doctor who has seen the person for five minutes.

Taking a little extra time, to explain things more slowly, and in simpler terms is very worthwhile, producing patient leaflets with pictures, larger text and easy words opens up healthcare not just to people with learning disabilities, but to a whole layer of the population.

Discrimination against people with learning disabilities in healthcare is not acceptable. They have the same human right to live a full and satisfying life as everyone else. Professionals in health services need to start thinking about, and examining their practice now - if we are not part of the solution the we are part of the problem. If we can combat this discrimination, it will mean better lives for hundreds of thousands of people.

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